About the blog - [tackle PV with rgk]
Tackle (PEMPHIGUS VULGARIS) PV with rgk (R.G . KAVINAYAA (aka Kavithra).
My personal journey with Pemphigus vulgaris; An unsettling war : STILL UNDER TREATMENT !
“The greatest liberation for one is to write what one goes through in life when the whole world feels crowded that it makes one to suffocate with loneliness.” And the very great liberation to a struggling one is to find that they are not alone in this journey and to get to read the other side of it. It may not be the solution, but rather a voice (hope).
The initiation for this platform is to liberate myself from the dense, and to be the voice of many unheard.
This blog is dedicated to spreading awareness about a rare autoimmune disorder, Pemphigus vulgaris (PV), which my doctor, Dr. Murlidhar Rajagopalan, aptly described as "the worst nightmare of disorders."
I, RG Kavithra (also known as Kavinayaa), was diagnosed with pemphigus vulgaris (PV) on July 3, 2023, at the beginning of my 20s. The official biopsy diagnosis followed on August 2, 2023.
I initially neglected the symptoms when they began in 2022. I experienced recurrent mouth ulcers, which doctors referred as stress-related. This negligence led to months of terror. Swallowing, talking, and even drinking water became excruciatingly difficult. I experienced severe bleeding while brushing my teeth and woke up to find my pillowcases stained red by April 2023. I lost 12 kilograms within 30 days and suffered from excessive hair loss.
The lesions gradually spread from my lips to my skin. At one point, 90% of my skin was eroded, and my bed sheets were constantly stained red. This severe skin condition developed into sepsis, a life-threatening infection, almost claiming my life that year.
New to the world of hospitalization, where days and nights blurred into one another, my doctor provided unwavering support and instilled hope in my parents that I would recover. I understood that the treatment journey would be long and arduous. My family and I are now marching forward, albeit towards an uncertain destination, with unwavering courage and unwavering belief in my doctor's expertise and the effectiveness of the treatment.
We are prepared to face the judgments and questions that society may throw at us.
Through the columns of this blog I would continue to spread my on going journey (fight) and knowledge on Pemphigus vulgaris with the guidance of my doctor.
(Dr. Murlidhar Rajagopalan - head of dermatology| Apollo Hospital chennai).
This blog is to communicate and spread the awareness about Pemphigus vulgaris an autoimmune disorder how fatal it could be. I suffered all these because of the lack of knowledge about it as it fell under dermatology department, but I had right guidance to reach to the doctor and it is really important to you all to understand that every hospitals doesn’t carry the devices which are required to detect this disorder. Only few hospitals does and I’m well aware and could guarantee that Apollo hospital does and I’m getting the right treatment. Often people ignore the value of the place to be treated. Take this as a sign that it is really important to go to the right place and to be in the right hands.
! STILL UNDER TREATMENT !
DOCTOR NAME: Dr. MURLIDHAR RAJAGOPALAN
HOSPITAL NAME: APOLLO HOSPITAL Chennai, Tamil Nadu, Greams Lane, 21, Greams Rd, Thousand Lights, Chennai, Tamil Nadu
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Author- R.G.Kavithra (aka) Kavinayaa |
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