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Showing posts from November, 2024

TOP 10 THINGS TO KNOW ABOUT PEMPHIGUS VULGARIS

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TOP 10 THINGS TO KNOW ABOUT PEMPHIGUS VULGARIS  "ATTITUDE TOWARDS THE DISORDER MATTERS!" It is hard, frustrating, and overwhelming to come across this term. People who are reading this might be among the warriors who got diagnosed recently, or the caregivers who are supporting their loved ones in suffering. Let this page make it easier for your initial research and understanding of terminologies. Keep in mind that every day is a learning experience! As days pass by, you will develop a tolerance to identify the triggers and symptoms. Treatment, flare-ups, and the duration of medication all differ from person to person. This page is for knowledge purposes only. World Rare Disease Day -  February 28 Definition: A rare autoimmune skin condition that cause blisters and sores on the skin or mucous membranes. 1.What foods should you avoid ? Spicy foods  hard foods  alcohol  processed sugar. food high in sodium  citric fruits (oranges, grapefruit, lemons, limes,...

About the blog- pemphigus vulgaris

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 About the blog - [tackle PV with rgk] Tackle (PEMPHIGUS VULGARIS) PV with rgk (R.G . KAVINAYAA (aka Kavithra). My personal journey with Pemphigus vulgaris; An unsettling war : STILL UNDER TREATMENT ! “ The greatest liberation for one is to write what one goes through in life when the whole world feels crowded that it makes one to suffocate with loneliness.” And the very great liberation to a struggling one is to find that they are not alone in this journey and to get to read the other side of it. It may not be the solution, but rather a voice (hope).   The initiation for this platform is to liberate myself from the dense, and to be the voice of many unheard. This blog is dedicated to spreading awareness about a rare autoimmune disorder, Pemphigus vulgaris (PV), which my doctor, Dr. Murlidhar Rajagopalan, aptly described as "the worst nightmare of disorders." I, RG Kavithra (also known as Kavinayaa ), was diagnosed with pemphigus vulgaris (PV) on July 3, 2023, at the beginn...