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Showing posts from November, 2024

My journey so far

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Dear gentle readers, I hope this blog finds you all well. I’m doing great, thank you. My quality of life has improved — I’m able to move and wake up every day with zero blisters. After two years, I’ve finally been off steroids for the last two months. I’ve been wearing nice clothes during my hospital reviews. I still have my bad days, but they don’t bother me anymore. My doctor, my well-wisher — specifically asked me to mention this, and I’m happily obligated to do so:                   “ I wore a nice dress today, and my doctor smiled at me." Yes , I wore a nice dress. I saw the smile reach his eyes, those fine lines creasing with warmth. The laughter filled the renovated room, adding the most beautiful touch to it.          YES ! My doctor was happy to see me, and we laughed at our silly jokes.               "I am a LIVING example that your patients are doing really well." My jour...
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About the blog- pemphigus vulgaris

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 About the blog - [tackle PV with rgk] Tackle (PEMPHIGUS VULGARIS) PV with rgk (R.G . KAVINAYAA (aka Kavithra). My personal journey with Pemphigus vulgaris; An unsettling war : STILL UNDER TREATMENT ! “ The greatest liberation for one is to write what one goes through in life when the whole world feels crowded that it makes one to suffocate with loneliness.” And the very great liberation to a struggling one is to find that they are not alone in this journey and to get to read the other side of it. It may not be the solution, but rather a voice (hope).   The initiation for this platform is to liberate myself from the dense, and to be the voice of many unheard. This blog is dedicated to spreading awareness about a rare autoimmune disorder, Pemphigus vulgaris (PV), which my doctor, Dr. Murlidhar Rajagopalan, aptly described as "the worst nightmare of disorders." I, RG Kavithra (also known as Kavinayaa ), was diagnosed with pemphigus vulgaris (PV) on July 3, 2023, at the beginn...
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