TOP 10 THINGS TO KNOW ABOUT PEMPHIGUS VULGARIS

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TOP 10 THINGS TO KNOW ABOUT PEMPHIGUS VULGARIS  "ATTITUDE TOWARDS THE DISORDER MATTERS!" It is hard, frustrating, and overwhelming to come across this term. People who are reading this might be among the warriors who got diagnosed recently, or the caregivers who are supporting their loved ones in suffering. Let this page make it easier for your initial research and understanding of terminologies. Keep in mind that every day is a learning experience! As days pass by, you will develop a tolerance to identify the triggers and symptoms. Treatment, flare-ups, and the duration of medication all differ from person to person. This page is for knowledge purposes only. World Rare Disease Day -  February 28 Definition: A rare autoimmune skin condition that cause blisters and sores on the skin or mucous membranes. 1.What foods should you avoid ? Spicy foods  hard foods  alcohol  processed sugar. food high in sodium  citric fruits (oranges, grapefruit, lemons, limes,...
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What is Pemphigus vulgaris and uncommon symptoms

 Define: A rare autoimmune disease that is characterized by painful blisters and erosions on the skin, long term condition that causes the immune system to fight against the body’s own cells in the same way that it fights off invading germs.

 

Uncommon symptoms:

PV is more than just painful blisters and erosions; it is more than their assault on healthy cells and their capacity to absorb protein that is found between the patient's skin cells. 
  • Undergoing a significant life-changing event impacts not only the physical aspect but also the mental, emotional, and social aspects.
  • Despite consuming a high amount of protein in the diet, there is still a deficiency in protein levels, necessitating the administration of albumin and plasma protein transfusions.
  • Skin erosion can occur with minimal friction, making it uncomfortable to wear regular clothing as they adhere to the skin, causing a sensation akin to being pricked by hundreds of needles simultaneously.
  • Removing clothing stuck in the wound exacerbates the discomfort and widens the erosion with each instance.
  • Hair loss can lead to bald patches on the head, with yellow fluid oozing from wounds and causing hair to clump together.
  • Brittle and discolored nails may be a sign of an underlying issue.
  • Muscle weakness can also be a symptom that should not be ignored.
  • Swelling in the feet and fingers  
  • Common occurrence of crusting in the eyes and face  
  • Hearing issues, ear blisters, and persistent wounds  
  • Unpleasant body odor due to crusting wounds  
  • High risk of secondary infections leading to bad odor  
  • Immediate medical assistance required for worsening odor and fruity-smelling blister fluids filled with blood.

*images from personal records 
Pemphigus vulgaris signs and symptoms

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