Poem- The callous soul

Image
Poem - THE CALLOUS SOUL The callous soul - RGK She wore down till her last shade ,             when you complained of the stain . Through the shattered mirror,          she gazing over her wilted weather's pain . Streams from her eyes trace down her parched lips ;   they fumed as if she tasted the ocean in her dips. Time swept her sore sole     as her heart blistered upon their desertion . And you complained of her, for the callous! The callous soul, for once,            envied death over existence. -RGK KAVINAYAA (aka) KAVITHRA Briefing the poem : She stood along their hardships when they mocked over her pain. She almost lost her identity with the reality and viewed the world inside her lifeless just like the winter weather. The faded features of hers are overwhelmed by the sensation of the salt in her tears pressing her cracked lips and understanding the fact that time doesn...
Post a Comment

Pemphigus vulgaris! frequently asked questions

Wondering questions about Pemphigus vulgaris ?

1.What is Pemphigus vulgaris and is it common?
: PV is an uncommon, potentially life threatening autoimmune disorder characterised by extensive erosions on healthy skin.
 
2. How do you diagnose  Pemphigus?
: Skin biopsy is done from the fresh blister(fluid containing bubble) , microscopy of perilesional skin.
 
3.What are the follow blood test to keep in track?
: They mostly need frequent monitoring of the CBC (compete blood count), LFT (Liver functional test) and Dsg1 and 3.
 
4.What is dsg1 and 3 ?
: Evaluation of desmoglein 1 and 3 ie dsg1 and 3 auto-antibodies seem to be more useful for monitoring the extend of the disease and severity by using enzyme-linked immunosorbent assay (ELISA).
 
5. How often is dsg1 and 3 monitored?
: It is monitored 4th and 8th weeks after the treatment.
 
6.What is the treatment for Pemphigus vulgaris?
: The treatment includes corticosteroids for few weeks or months to suppress the autoimmune reaction and prevent the formation of new blisters. Immunosuppressant to keep the immune system from attacking. Immunotherapy of Rituximab injection. (About rituximab: refer article https://www.researchgate.net/publication/322657549_Rituximab_in_the_treatment_of_skin_diseases )
 
7. Is Pemphigus vulgaris contagious?
: No, it is not contagious. You can’t spread the condition to others.
 
8. Does Pemphigus vulgaris have cure?
: It’s a lifelong condition that can be managed with ongoing treatment. Unfortunately no cure has been found yet.
 
9. Why is Pemphigus vulgaris fatal?
: It is fatal and their most common cause is due to secondary infection(sepsis) which are developed due to sore patches. It will be life threatening without treatment .
 
10. Does genetic factors play a role in Pemphigus vulgaris?
: Genetics does play a role, several data are available from genetic epidemiology studies indicating that susceptibility to the disease is inherited. But it is not the case for all the autoimmune disorders, first relative gene depends. And other exogenous triggers as well.

11. What are the triggers for Pemphigus vulgaris?
: The environmental factors, endogenous (such as emotional stress, hormonal disorder), viral attack, surgery, electric burns, dietary factors.

12. What is the key factor for the recovery?
: The key factor is staying active, no matter the level of pain mobility to body and staying happy and having good night sleep are prior.
Discover answers to frequently asked questions on Pemphigus vulgaris



Comments

Anonymous said…
A brilliant start Kavi. Spreading awareness and trying to help others when you are in this condition. You are stronger than you know. More power to you...!
April 16, 2024 at 8:59 PM
Post a Comment

Popular posts from this blog

What is Pemphigus vulgaris and uncommon symptoms

Image
  Define:  A rare autoimmune disease that is characterised by painful blisters and erosions on the skin, long term condition that causes the immune system to fight against the body’s own cells in the same way that it fights off invading germs .   Uncommon symptoms: PV is more than just painful blisters and erosions; it is more than their assault on healthy cells and their capacity to absorb protein that is found between the patient's skin cells.  Undergoing a significant life-changing event impacts not only the physical aspect but also the mental, emotional, and social aspects. Despite consuming a high amount of protein in the diet, there is still a deficiency in protein levels, necessitating the administration of albumin and plasma protein transfusions. Skin erosion can occur with minimal friction, making it uncomfortable to wear regular clothing as they adhere to the skin, causing a sensation akin to being pricked by hundreds of needles simultaneously. Removing clo...
Read more

Tips and tricks on managing Pemphigus vulgaris

Image
  Tips and tricks that help me going!  Biggest alteration in my daily life after Pemphigus vulgaris that affected more were the basic necessities. The items added down are ones recommended by my doctor and some products that are personally helping me till date.  How do I protect my skin from friction during open wound? :  While sitting on the chair and while sleeping, I use under pad sheets (only change is  use the plastic side of the pad ). Yes, they produce heat but they are best for frictionless and better than cloth rubbing on the wound. It is impossible to carry ourselves without FRICTION.       What clothes can be worn? :  I’ve been using hospital gowns at home, front opening as they will not affect my under arm (axila) and bigger the size bigger the comfort as they don’t disturb with the movements. For hospital visits cotton dresses preferably front opening and bigger in size than normal.             ...
Read more

Pemphigus vulgaris on skin pt3

Image
                                              Chapter 3 * Trigger warning! The stages of life grief started to engulf me in order: denial, anger, bargaining, depression    and acceptance.    Every step consumed a huge parts of me leaving me hollow  more than ever! Stage one: Denial   August 2 2023, 1:30am  I was rushed to the hospital (Apollo Hospital) through an ambulance from Chennai international airport. I prepared a complete documented history of my case with the medical prescriptions and images of my skin as per the progress, I prepared this documentation because I wasn’t confident enough whether I will be conscious enough to explain or will be able to bare the pain to show the raw skin for examination. The next minute I found myself at the ER, doctors around me asking about when and how it started, finding my dad next to me in tear...
Read more